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An examination of the effects of a patient-designed-and-informed participant information sheet in comparison with a standard, researcher-designed information sheet on recruitment, retention and understanding: Protocol for a study-within-a-trial
(F1000Research, 2020-01-24)
Background: This protocol describes a double-blind, randomised non-inferiority study-within-a-trial (SWAT), comparing the effects of a patient-designed-and-informed participant information sheet with a standard, ...
A phenomenological study of occupational participation for people who identify as transgender
(Healio, 2020-03-12)
Abstract
INTRODUCTION:
The challenges that transgender people face, which are caused by a multitude of factors, have been well documented. However, changes in occupational participation are less well known. This research ...
Evaluating the feasibility and preliminary efficacy of a Cognitive Occupation-Based programme for people with Multiple Sclerosis (COB-MS): protocol for a feasibility cluster-randomised controlled trial
(BMC (part of Springer Nature), 2020-03-17)
Background
Cognitive difficulties experienced by people with multiple sclerosis (MS) impact their quality of life and daily functioning, from childcare and work, to social and self-care activities. Despite the high ...
Patterns of occupational engagement among community-dwelling older adults in Singapore: An exploratory mixed method study
(SAGE Publications, 2021-05-04)
Introduction
The aim of this study is to understand the patterns of occupations among community-dwelling older adults in Singapore. The objectives are to describe their occupational engagement using the Activity Card Sort ...
Research interrupted: The impact of the COVID-19 pandemic on multiple sclerosis research in the field of rehabilitation and quality of life
(SAGE Publications, 2021-08-26)
Background
The COVID-19 pandemic has likely had a negative impact on rehabilitation and quality of life (QoL) research in multiple sclerosis (MS).
Method
We explored perceived barriers to research among 87 researchers, ...
Dating with a diagnosis: The lived experience of people with multiple sclerosis
(SAGE Publications, 2020-12-07)
Background: With an average age of onset of about 20-40 years,
MS usually manifests during early adulthood, which is considered
to be a critical period for the development and maintenance of relationships particularly ...
Disclosing a diagnosis in the workplace: Perspective of people with multiple sclerosis
(Cambridge University Press, 2021-02-17)
Background:
Early withdrawal from the workforce is associated with a diagnosis of multiple sclerosis (MS), with employment retention rates also lower than in the general population. Despite legal requirements, equality ...
Occupational therapy interventions for multiple sclerosis: A scoping review
(Taylor & Francis (Routledge), 2020-07-09)
We reviewed the evidence regarding the effectiveness of occupational therapy interventions in improving outcomes for adults with multiple sclerosis.
Method
We completed a scoping review of literature in the area of ...
A qualitative investigation of reasoning behind decisions to decline participation in a research intervention: A study-within-a-trial
(SAGE Publications, 2021-08-06)
The current study-within-a-trial explored individuals’ decisions to decline participation in research trialling a chronic illness-focused therapy (i.e. multiple sclerosis). Four themes were identified from seven semi-structured ...
Exploring the impact of ineligibility on individuals expressing interest in a trial aimed at improving daily functioning regarding perceptions of self, research and likelihood of future participation
(BMC, 2021-11-27)
Background
Eligibility guidelines in research trials are necessary to minimise confounds and reduce bias in the interpretation of potential treatment effects. There is limited extant research investigating how being deemed ...