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Disclosing a diagnosis in the workplace: Perspective of people with multiple sclerosis
(Cambridge University Press, 2021-02-17)
Background:
Early withdrawal from the workforce is associated with a diagnosis of multiple sclerosis (MS), with employment retention rates also lower than in the general population. Despite legal requirements, equality ...
A qualitative investigation of reasoning behind decisions to decline participation in a research intervention: A study-within-a-trial
(SAGE Publications, 2021-08-06)
The current study-within-a-trial explored individuals’ decisions to decline participation in research trialling a chronic illness-focused therapy (i.e. multiple sclerosis). Four themes were identified from seven semi-structured ...
Exploring the impact of ineligibility on individuals expressing interest in a trial aimed at improving daily functioning regarding perceptions of self, research and likelihood of future participation
(BMC, 2021-11-27)
Background
Eligibility guidelines in research trials are necessary to minimise confounds and reduce bias in the interpretation of potential treatment effects. There is limited extant research investigating how being deemed ...
Dating with a diagnosis: The lived experience of people with multiple sclerosis
(Springer, 2021-05-26)
Multiple Sclerosis (MS) is a neurological condition which usually manifests between the ages of 20 40 years. This is a critical period for developing relationships, particularly romantic relationships. People with MS can ...
Twelve months into a feasibility trial: reflections on three experiences of public and patient involvement in research
(F1000Research and Health Research Board, 2021-01-28)
In this Open Letter we present reflections from three different perspectives on the integration of public and patient involvement (PPI) in a research trial. We reflect on the experience of having a patient employed as a ...
Developing understandings of occupational (in)justice with occupational therapy students in a transnational project
(Routledge, 2021-02-09)
This article describes an innovative transnational education project involving three European universities, funded through ERASMUS+. One of its aims was to develop and provide a curriculum to facilitate students’ understanding ...