dc.contributor.author | Joyce, Robert | |
dc.contributor.author | Dwyer, Christopher P. | |
dc.contributor.author | Hynes, Sinéad M. | |
dc.date.accessioned | 2021-02-02T11:09:36Z | |
dc.date.available | 2021-02-02T11:09:36Z | |
dc.date.issued | 2021-01-28 | |
dc.identifier.citation | Joyce, Robert, Dwyer, Christopher P., & Hynes, Sinéad M. (2021). Twelve months into a feasibility trial: reflections on three experiences of public and patient involvement in research. HRB Open Research, 4(11). doi:10.12688/hrbopenres.13205.1 | en_IE |
dc.identifier.issn | 2515-4826 | |
dc.identifier.uri | http://hdl.handle.net/10379/16527 | |
dc.description.abstract | In this Open Letter we present reflections from three different perspectives on the integration of public and patient involvement (PPI) in a research trial. We reflect on the experience of having a patient employed as a contract researcher, with no prior research experience, on a feasibility trial of cognitive rehabilitation in multiple sclerosis. This Open Letter is written by the PPI research team member with reflections from a researcher on the trial and the principle investigator. We will discuss some of the changes made and the impacts that have been resulted from of PPI input into the trial. We focus on PPI involvement in participant recruitment, the development of trial material, integration of PPI along the research cycle, and collaboration. We hope that this Open Letter will encourage principle investigators and groups to include PPI members as part of the research team and help patients and members of the public understand what the experience of PPI members is like | en_IE |
dc.description.sponsorship | We would like to thank the wider PPI advisory group to the COB-MS trial and PPI Ignite at NUI Galway for their ongoing support throughout the trial. Thank you also to MS Ireland for their continued support throughout. | en_IE |
dc.format | application/pdf | en_IE |
dc.language.iso | en | en_IE |
dc.publisher | F1000Research and Health Research Board | en_IE |
dc.relation.ispartof | HRB Open Research | en |
dc.rights | Attribution-NonCommercial-NoDerivs 3.0 Ireland | |
dc.rights.uri | https://creativecommons.org/licenses/by-nc-nd/3.0/ie/ | |
dc.subject | public and patient involvement | en_IE |
dc.subject | PPI | en_IE |
dc.subject | involvement | en_IE |
dc.subject | multiple sclerosis | en_IE |
dc.title | Twelve months into a feasibility trial: reflections on three experiences of public and patient involvement in research | en_IE |
dc.type | Article | en_IE |
dc.date.updated | 2021-02-01T18:40:00Z | |
dc.identifier.doi | 10.12688/hrbopenres.13205.1 | |
dc.local.publishedsource | https://doi.org/10.12688/hrbopenres.13205.1 | en_IE |
dc.description.peer-reviewed | peer-reviewed | |
dc.contributor.funder | Health Research Board | |
dc.internal.rssid | 24619505 | |
dc.local.contact | Sinéad Hynes. Email: sinead.hynes@nuigalway.ie | |
dc.local.copyrightchecked | Yes | |
dc.local.version | SUBMITTED | |
nui.item.downloads | 104 | |