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dc.contributor.authorTierney, Edel
dc.contributor.authorMcEvoy, Rachel
dc.contributor.authorO'Reilly-de Brún, Mary
dc.contributor.authorde Brún, Tomas
dc.contributor.authorOkonkwo, Ekaterina
dc.contributor.authorRooney, Michelle
dc.contributor.authorDowrick, Chris
dc.contributor.authorRogers, Anne
dc.contributor.authorMacFarlane, Anne
dc.date.accessioned2018-09-20T16:26:41Z
dc.date.available2018-09-20T16:26:41Z
dc.date.issued2014-07-24
dc.identifier.citationTierney, Edel; McEvoy, Rachel; O'Reilly-de Brún, Mary; de Brún, Tomas; Okonkwo, Ekaterina; Rooney, Michelle; Dowrick, Chris; Rogers, Anne; MacFarlane, Anne (2014). A critical analysis of the implementation of service user involvement in primary care research and health service development using normalization process theory. Health Expectations 19 (3), 501-515
dc.identifier.issn1369-6513
dc.identifier.urihttp://hdl.handle.net/10379/14163
dc.description.abstractBackgroundThere have been recent important advances in conceptualizing and operationalizing involvement in health research and health-care service development. However, problems persist in the field that impact on the scope for meaningful involvement to become a routine - normalized - way of working in primary care. In this review, we focus on current practice to critically interrogate factors known to be relevant for normalization - definition, enrolment, enactment and appraisal. MethodOurs was a multidisciplinary, interagency team, with community representation. We searched EBSCO host for papers from 2007 to 2011 and engaged in an iterative, reflexive approach to sampling, appraising and analysing the literature following the principles of a critical interpretive synthesis approach and using Normalization Process Theory. FindingsTwenty-six papers were chosen from 289 papers, as a purposeful sample of work that is reported as service user involvement in the field. Few papers provided a clear working definition of service user involvement. The dominant identified rationale for enrolling service users in primary care projects was linked with policy imperatives for co-governance and emancipatory ideals. The majority of methodologies employed were standard health services research methods that do not qualify as research with service users. This indicates a lack of congruence between the stated aims and methods. Most studies only reported positive outcomes, raising questions about the balance or completeness of the published appraisals. ConclusionTo improve normalization of meaningful involvement in primary care, it is necessary to encourage explicit reporting of definitions, methodological innovation to enhance co-governance and dissemination of research processes and findings.
dc.publisherWiley-Blackwell
dc.relation.ispartofHealth Expectations
dc.subjectcritical interpretive synthesis
dc.subjectnormalization process theory
dc.subjectpatient participation
dc.subjectprimary health care
dc.subjectservice user involvement
dc.subjectpatient participation
dc.subjectpublic involvement
dc.subjectdecision-making
dc.subjectmental-health
dc.subjectprogram
dc.subjectquality
dc.subjectimpact
dc.subjectlay
dc.subjectquestionnaire
dc.subjectpromotion
dc.titleA critical analysis of the implementation of service user involvement in primary care research and health service development using normalization process theory
dc.typeArticle
dc.identifier.doi10.1111/hex.12237
dc.local.publishedsourcehttp://europepmc.org/articles/pmc5055238?pdf=render
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