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dc.contributor.authorBourke, Mary
dc.contributor.authorHoughton, Catherine
dc.date.accessioned2018-09-20T16:01:26Z
dc.date.available2018-09-20T16:01:26Z
dc.date.issued2018-03-08
dc.identifier.citationBourke, Mary; Houghton, Catherine (2018). Exploring the need for transition readiness scales within cystic fibrosis services: a qualitative descriptive study. Journal of Clinical Nursing 27 (13), 2814-2824
dc.identifier.issn0962-1067
dc.identifier.urihttp://hdl.handle.net/10379/10493
dc.description.abstractAims and objectivesTo explore healthcare professionals' and patients' perceptions of the potential use of a Transition Readiness Scale in cystic fibrosis care. This included an examination of barriers and facilitators to its implementation along with the identification of key items to include in a Transition Readiness Scale. BackgroundDue to increasing life expectancy and improved quality of life, more adolescents with cystic fibrosis are transitioning from paediatric to adult health care. To assess and correctly manage this transition, a more structured approach to transition is advocated. This can be achieved using a Transition Readiness Scale to potentially identify or target areas of care in which the adolescent may have poor knowledge. These key items include education, developmental readiness taking into account relationships, reproduction, future plans and self-management skills. Existing tools to gauge readiness concentrate mainly on education and self-care needs assessment as their key items. Currently, there is no specific cystic fibrosis Transition Readiness Scale in use in Ireland or internationally. DesignThe study used a descriptive qualitative design. MethodsData were collected using semi-structured interviews (n=8) and analysed using a thematic approach. ResultsThe findings identified the potential benefits of this tool and second the resources which need to be in place before its development and implementation into cystic fibrosis services. ConclusionTransition Readiness Scales have substantial relevance with cystic fibrosis services emphasising the importance of establishing the necessary resources prior to its implementation. These were identified as more staff, a dedicated private space and staff training and education. Relevance to Clinical PracticeSignificant resources are needed to fully integrate Transition Readiness Scales in practice. The study findings suggest multidisciplinary collaborations, and patient engagement is pivotal in planning and easing the transition process for adolescents with cystic fibrosis.
dc.publisherWiley
dc.relation.ispartofJournal of Clinical Nursing
dc.subjectcystic fibrosis
dc.subjectqualitative
dc.subjectthematic analysis
dc.subjecttransition
dc.subjecttransition readiness
dc.subjecttransition readiness scales
dc.subjectadult health-care
dc.subjectchronic disease
dc.subjectadolescents
dc.subjectadherence
dc.titleExploring the need for transition readiness scales within cystic fibrosis services: a qualitative descriptive study
dc.typeArticle
dc.identifier.doi10.1111/jocn.14344
dc.local.publishedsourcehttps://onlinelibrary.wiley.com/doi/pdf/10.1111/jocn.14344
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