Now showing items 1-4 of 4
An examination of the effects of a patient-designed-and-informed participant information sheet in comparison with a standard, researcher-designed information sheet on recruitment, retention and understanding: Protocol for a study-within-a-trial
Background: This protocol describes a double-blind, randomised non-inferiority study-within-a-trial (SWAT), comparing the effects of a patient-designed-and-informed participant information sheet with a standard, ...
Occupational therapy interventions for multiple sclerosis: A scoping review
(Taylor & Francis (Routledge), 2020-07-09)
We reviewed the evidence regarding the effectiveness of occupational therapy interventions in improving outcomes for adults with multiple sclerosis. Method We completed a scoping review of literature in the area of ...
Twelve months into a feasibility trial: reflections on three experiences of public and patient involvement in research
(F1000Research and Health Research Board, 2021-01-28)
In this Open Letter we present reflections from three different perspectives on the integration of public and patient involvement (PPI) in a research trial. We reflect on the experience of having a patient employed as a ...
Dating with a diagnosis: The lived experience of people with multiple sclerosis
(SAGE Publications, 2020-12-07)
Background: With an average age of onset of about 20-40 years, MS usually manifests during early adulthood, which is considered to be a critical period for the development and maintenance of relationships particularly ...